Tuesday, September 1, 2009

Chromosome 5q band 14.3 deletion

Hi, my name is Belinda and my son Alexander has just been diagnosed with this missing band 14.3 of chromosome 5q. I am in hope of getting in contact with anyone else that has a child with the same diagnosis.

My son is around 17mths of age and has the development of about a 5 month old. He is a beautiful little boy and gives me great joy now that he has started to smile. I also have a 2 year old daughter who is so patient and caring towards him.

If there is anyone out there that would like to email or chat I am willing to talk. To me it is nice to talk to someone that understands exactly what you are going through. IE celebrating the achievements that their child can do. (Eg smilling)